Well, we received the final diagnosis for the baby. He has Fanconi's Anemia. We were really hoping the tests would come back negative for this, but we were not so lucky. This is a genetic disorder that both parents must carry the gene for. There is a 25% chance of passing it to a child and 1 in 100,000 children are diagnosed with it. We were also informed that this is what Abby had as well. Back in 2000 we had Chromosome tests run on Abby but no diagnosis was made and we were told what happened with her was a fluke, like lightening striking. It took the right doctors seeing the right things and ordering a specific test to make the right diagnosis.
Fanconi's Anemia is when your cells are fragile and succeptable to breakage. This fragility leads to infections and cancer. As you can see this is something no parent wants to hear.
To make matters much worse we were told some children have no birth defects but still have the disorder and will sometime in their youth start to experience problems. We were told we needed to have Leila and Tess tested. I can't tell you how awful this was. Bringing your children in to get blood taken to be tested for a life shortening disorder is something no parent should have to go through. We were told it would take 2 to 3 weeks to get the results back.
I can't tell you how much it helped knowing everyone was praying for us. People we know had their respective churches praying for us. People we didn't know who hadn't believed in God were praying for us. The number of people praying for us was just amazing!
2 weeks later, just two days before Tess's 1st birthday party we got the call. Both girls tests came back normal. Praise the Lord! Tess's birthday was a double celebration.
Thank you so much for praying for us and our children. When something like this happens your reminded that tomorrow is not promised to us, we don't know what the future holds. So hold your family close and thank God for them every day you have them.
Thank you for your continued support. I will keep you updated on the baby front.
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