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<channel><title><![CDATA[The DeHaan Family - Cooper]]></title><link><![CDATA[http://thedehaans.weebly.com/cooper.html]]></link><description><![CDATA[Cooper]]></description><pubDate>Tue, 10 Nov 2009 20:50:18 +0700</pubDate><generator>Weebly</generator><item><title><![CDATA[Finally Home!]]></title><link><![CDATA[http://thedehaans.weebly.com/2/post/2009/11/finally-home.html]]></link><comments><![CDATA[http://thedehaans.weebly.com/2/post/2009/11/finally-home.html#comments]]></comments><pubDate>Tue, 10 Nov 2009 06:35:10 +0700</pubDate><category><![CDATA[Uncategorized]]></category><guid isPermaLink="false">http://thedehaans.weebly.com/2/post/2009/11/finally-home.html</guid><description><![CDATA[Well, it has been a long month.&nbsp; A month ago Cooper went in to the hospital to have his tumor removed.&nbsp; The day of the surgery seemed to last forever.&nbsp;&nbsp;&nbsp;We were up at the crack of dawn (not that I could sleep anyway) with a 5am check in time at the hospital.&nbsp; I have come to really dislike the surgical waiting room, every minute seems to drag when your in there.&nbsp; The MRI and surgery didn't take as long as they  [...] ]]></description><content:encoded><![CDATA[<div  class="paragraph" style=" text-align: left; ">Well, it has been a long month.&nbsp; A month ago Cooper went in to the hospital to have his tumor removed.&nbsp; The day of the surgery seemed to last forever.&nbsp;&nbsp;&nbsp;We were up at the crack of dawn (not that I could sleep anyway) with a 5am check in time at the hospital.&nbsp; I have come to really dislike the surgical waiting room, every minute seems to drag when your in there.&nbsp; The MRI and surgery didn't take as long as they anticipated&nbsp;and Cooper was out of surgery by 2:30 pm.&nbsp; There were some places that the tumor was difficult to cut out and they weren't sure about his motor function on his right side (The tumor was on his left side).&nbsp;His poor little head was swollen and the incision resembled something from Frankenstein but he did amazing bouncing back from surgery.&nbsp; On Friday he was discharged after receiving some platlets, he has been having some problems with his blood counts.&nbsp; Wow, brain surgery on Monday home on Friday.&nbsp; When we left the hospital Cooper could still not use his right side but after one nap in his own bassinet (and countless prayers :) )&nbsp;he started waving his right arm around.&nbsp; What an amazing God we serve!&nbsp; Cooper right side has been working great.<BR><BR>We have been spending our Mondays at the Hemot Clinic to get Coopers blood counts checked.&nbsp; His hemoglobin is up and down and after surgery he needed platlets.&nbsp; The monday after surgery his counts were ok and we were told to come back next monday.&nbsp; The following monday we went in for counts again, his hemoglobin was low but his platlets were up.&nbsp; Cooper needed to have a blood transfusion.&nbsp; This was our 1st transfusion as an outpatient, since Cooper is so little the transfusion takes 3 hours.&nbsp; He had been running a fever off and on at home, but we have all been fighting a flu like illness.&nbsp; Cooper also tends to run fevers off and on.&nbsp; Because of the fever they ran a blood culture and gave him some IV antibiotics (just in case).&nbsp; We got home around 6pm after a really long day at&nbsp;the hemot clinic and&nbsp;Cooper seemed to be perkier after his transfusion.<BR><BR>I&nbsp;had&nbsp;just gotten into bed at 11:00pm when we&nbsp;received a call from the Hemot clinic.&nbsp; Coopers culture started growing a bacteria and we needed to get him to&nbsp;the ER&nbsp;asap.&nbsp; I&nbsp;brought Cooper in and after&nbsp;hanging out in&nbsp;an ER room until 3:30am we were admitted to the&nbsp;PICU.&nbsp;&nbsp;They didn't know exactly what germ was causing the infection yet but started doing testing to find out.&nbsp; I didn't really grasp the&nbsp;severity of the infection&nbsp;until&nbsp;several days later when&nbsp;the hemot Dr. said kids with this type of infection are gravely ill and take days to stabilize.&nbsp; We got really lucky, usually it takes 48 to 72 hours for a culture to show a positive and Coopers came back positive in 8 hours.&nbsp; He also got jump on antibiotics at the clinic.&nbsp; Talk about providence.&nbsp; They were able to fine tune the antibiotics and the cultures started coming back negative.&nbsp; I thought he would be in the hospital for several days but I was in for a rude awakening when they told me 14 days!&nbsp; The antibiotics were IV only and he had to be isolated because of infection.&nbsp; We missed having our family all together for Halloween and Tess's birthday party.&nbsp; Some days were diffcult for all of us.&nbsp; We really appreciate the meals and everyone helping out with the girls.&nbsp; God has really carried us through this month!<BR><BR>Cooper has been doing great!!&nbsp; He seems to be feeling better than he has in some time.&nbsp; We are finally getting to bring him home today and we are so excited.&nbsp; Tess has been calling the hospital Cooper's house and we are looking forward to our house being Cooper's house.&nbsp; We go back to the hemot clinic on monday for counts and a blood culture.&nbsp; Please pray these will come back normal.&nbsp; Oh yeah, Coopers tumor came back low grade benign.&nbsp; Things are looking up :)<BR><BR><BR><BR>God Bless,<BR>Kalani</div>]]></content:encoded></item><item><title><![CDATA[Almost 9 months old!]]></title><link><![CDATA[http://thedehaans.weebly.com/2/post/2009/10/almost-9-months-old.html]]></link><comments><![CDATA[http://thedehaans.weebly.com/2/post/2009/10/almost-9-months-old.html#comments]]></comments><pubDate>Thu, 08 Oct 2009 11:46:53 +0700</pubDate><category><![CDATA[Uncategorized]]></category><guid isPermaLink="false">http://thedehaans.weebly.com/2/post/2009/10/almost-9-months-old.html</guid><description><![CDATA[HI everyone!&nbsp; I know it has been a while since I posted about Cooper.&nbsp; Time has been flying and the kids are keeping me busy, I don't know where the last 3 months went.&nbsp; Cooper is unofficially 21 1/4 inches long&nbsp;and a hard fought 9 lbs 9oz.&nbsp; He is making great developmental strides, rolling to his sides and all the way over occasionally.&nbsp; His neck has gotten much stronger and he doesn't require as much support.&nbs [...] ]]></description><content:encoded><![CDATA[<div  class="paragraph" style=" text-align: left; ">HI everyone!&nbsp; I know it has been a while since I posted about Cooper.&nbsp; Time has been flying and the kids are keeping me busy, I don't know where the last 3 months went.&nbsp; Cooper is unofficially 21 1/4 inches long&nbsp;and a hard fought 9 lbs 9oz.&nbsp; He is making great developmental strides, rolling to his sides and all the way over occasionally.&nbsp; His neck has gotten much stronger and he doesn't require as much support.&nbsp; He is moving his arms and legs more, clapping his hands&nbsp;and he always has his fingers in his mouth.&nbsp; He loves, loves, loves his fingers! When he is feeling well, he so happy and content.&nbsp; He has therapy every Friday, and we have had to make new goals as he has reached all of his previous ones.<br />Of course he has his bad days mainly due to stomach discomfort.&nbsp; The poor guy will cry non-stop which is very frustrating to us since not much will make him feel better.&nbsp;&nbsp;It is hard to feel helpless and I'm sure Cooper is not enjoying it either.&nbsp; He was recently put on Neuronton, an anti seizure drug,&nbsp; which sometimes helps to&nbsp;block the brains pain signals and and will help relax him during feedings.&nbsp; So far I haven't seen any difference, but it is a step in the right direction.<br />In the past months, Cooper has been in the hospital for several larynoscopies.&nbsp; The first several scopes he needed to be dilated and have a growth removed.&nbsp; The last one the doctor did not have to do anything.&nbsp; Yeah!.&nbsp; We will not have to go in for another unless we notice a change in his breathing.<br />We had a visit with Dr. Capone, the eye surgeon at Beaumont Children's Hospital in Royal Oak.&nbsp; It went really well and the findings were that the back of Coopers bad eye developed normally, just the front didn't develop all of the way.&nbsp; This was great news and hopefully correctable with surgery.&nbsp; The eye will never have the best vision but the doctors can make it work to the best of it's abilities.<br />We have been back to hemotology for blood work, Coopers counts look good except for his hemoglobin.&nbsp; We were sent home and told to add iron to his already iron fortified formula and come back in a week.&nbsp; His counts improved and we narrowly avoided a blood transfusion. Whew!&nbsp; We go back in 2 months for a followup.&nbsp; What an answer to prayer to see such an improvement in just a week.<br />He has also had another Baer test to have his hearing rechecked and he went from moderate hearing loss to mild hearing loss.&nbsp; We placed an order for his BAHA (Bone Conduction Hearing Aid) several months ago through children's special health services and are still waiting for an answer.&nbsp; Hearing aids are kind of a gray area for them and the BAHA is very expensive.&nbsp; In the mean time, an audiologist through the school system borrowed someones hearing aid and tried it on Cooper.&nbsp; His response was immediate, he would be very still when he heard sound and concentrate.&nbsp; When the noise stopped he would start crying.&nbsp; I can't wait for the day I can sing to him and he can hear me.&nbsp; How awesome will it be for him to hear his sisters as they play with him!<br />The lastest in our update is his most recent MRI on his brain.&nbsp; The tumor although it has not grown in size has changed in consistency.&nbsp; The center of the tumor has grown dark and is causing some swelling in his brain around the tumor.&nbsp; We don't know for sure but the dark spot could mean the tumor is dying.&nbsp; We had a consult with Cooper's neurologist today who told us it is time to take it out.&nbsp; The surgery will take place on Monday, October12th.&nbsp; It will take at least 6 hours and Cooper could be in the hospital approx. a week.&nbsp; The tumor is in a good position to remove it and it does not seem overly complicated.&nbsp; That said, it is brain surgery and there are always risks.&nbsp; As always please continue to pray for family in the coming weeks.&nbsp; <br />Kalani<br /><br />Isaiah 40:31 They that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.<br /></div>]]></content:encoded></item><item><title><![CDATA[6 months and counting]]></title><link><![CDATA[http://thedehaans.weebly.com/2/post/2009/07/6-months-and-counting.html]]></link><comments><![CDATA[http://thedehaans.weebly.com/2/post/2009/07/6-months-and-counting.html#comments]]></comments><pubDate>Wed, 22 Jul 2009 19:08:59 +0700</pubDate><category><![CDATA[Uncategorized]]></category><guid isPermaLink="false">http://thedehaans.weebly.com/2/post/2009/07/6-months-and-counting.html</guid><description><![CDATA[What a crazy month it has been!&nbsp; We went into the hospital for what we thought would be a simple g-tube and nissan operation on June 16th.&nbsp; Little did we know...Cooper headed into surgery around 11:00, several hours later we were told they couldn't find a vein and would be putting a central line in.&nbsp; Another several hours later, when we thought the surgery would be finished we were told that they FINALLY got the line in.&nbsp;&nbsp; He has s [...] ]]></description><content:encoded><![CDATA[<p  style=" text-align: left; ">What a crazy month it has been!&nbsp; We went into the hospital for what we thought would be a simple g-tube and nissan operation on June 16th.&nbsp; Little did we know...<BR><BR>Cooper headed into surgery around 11:00, several hours later we were told they couldn't find a vein and would be putting a central line in.&nbsp; Another several hours later, when we thought the surgery would be finished we were told that they FINALLY got the line in.&nbsp;&nbsp; He has some slightly enlarged organs that made the operation a little more complicated but the surgery was termed a success and we headed up to the PCCU at Spectrum Health. <BR><BR>All seemed to be going well until the next day.&nbsp; Cooper was having difficulty breathing.&nbsp; After a day spent with various breathing treatments and medications his body was not able to get rid of the Co2 gases.&nbsp; Darrel was at the hospital and they told him to stick around in case they needed to do an emergency tracheostomy.&nbsp; Needless to say we were pretty scared, how did a simple operation lead to this?&nbsp; Around midnight they decided to put him back on a ventilator.&nbsp; He was sedated and on&nbsp;the ventilator for 4 days.&nbsp; He just looked awful, but he was such a little fighter.&nbsp; After they took him off the vent he did great!&nbsp; <BR><BR>Several days later he had a Larynoscopy w/ dilation.&nbsp; The findings were his airway was damaged from the reflux and it was extremely swollen with scarring.&nbsp; This combined with the&nbsp;breathing tube used during surgery made his airway swell up and close off.&nbsp; The day following the larynoscopy he started having breathing problems again, it took about 4 days for him to recover.&nbsp;<BR><BR>He has been having feeding issues since the surgery and only tolerates less than half the amount he was fed before.&nbsp; He is on&nbsp;a continuous feeding pump at night and gets 4 feedings during the day.&nbsp; The daytime feedings are uncomfortable for him and he cries after being fed.&nbsp; His stomach will slowly stretch out to tolerate more food comfortably.<BR><BR>18 days later&nbsp;we were able to welcome Cooper back home.&nbsp; We were so happy to have our family back together and get some sense of normalcy back, So often when&nbsp;Cooper&nbsp;was in the hospital even though Leila knew he wasn't home, she would still come downstairs in the morning, go to his bassinet and ask, &nbsp;"where's Coop?"&nbsp; We all just wanted him home.&nbsp;&nbsp; <BR><BR>After this experience I feel like I have so much to learn.&nbsp; I was so naive to think this would go so smoothly.&nbsp; We are just newbies in this whole medical journey.&nbsp; It's one step forward two steps back, expect the unexpected and a number of other cliches.&nbsp; One thing I knew but was driven home during this visit is, appreciate what you have it might be gone in&nbsp;literally a&nbsp;breath.&nbsp; Keep your eye on what is really important.<BR><BR>Since this visit Cooper has had another Larynoscopy w/ dilation and removal of tissue growth.&nbsp; He was in the hospital overnight and home the next day, breathing great.&nbsp; He will have another at the end of August.<BR><BR>He had an MRI on his brain during the stay and his tumor has shown some changes.&nbsp; Cooper will have another MRI in Sept.&nbsp; The neurologist is thinking he will either biopsy the tumor&nbsp;or drain the cyst (tumor).&nbsp; So we are gearing up for the fall.<BR><BR>He missed his visit with Dr. Capone and we have rescheduled for the beginning of August.<BR><BR>Did I say it has been a crazy month?&nbsp;:) Thanks for everyones meals, support and prayers.&nbsp; We are so lucky to have all of you on this journey with us.&nbsp; We truly believe that while we were meant to have Cooper and God entrusted him to us, that you were meant to be part of the ride.&nbsp; God not only has a plan for us but a plan for you.&nbsp; <BR><BR>God Bless<BR>Kalani</p>]]></content:encoded></item><item><title><![CDATA[5 Months Old!]]></title><link><![CDATA[http://thedehaans.weebly.com/2/post/2009/06/5-months-old.html]]></link><comments><![CDATA[http://thedehaans.weebly.com/2/post/2009/06/5-months-old.html#comments]]></comments><pubDate>Sun, 14 Jun 2009 18:41:00 +0700</pubDate><category><![CDATA[Uncategorized]]></category><guid isPermaLink="false">http://thedehaans.weebly.com/2/post/2009/06/5-months-old.html</guid><description><![CDATA[Cooper is 5 months old this week.&nbsp; He is now 9lbs 1.5 oz.&nbsp; The weight gain is slow but he is getting chubby.&nbsp; He will be  [...] ]]></description><content:encoded><![CDATA[<div ><div style="text-align: center;"><a><img src="http://thedehaans.weebly.com/uploads/1/0/1/8/1018150/9145619.jpg?417x311" style="margin-top: 10px; margin-bottom: 10px; margin-left: 10px; margin-right: 10px; border: 1px solid black;" alt="Picture" /></a><div style="display: block; font-size: 90%; margin-top: -10px; margin-bottom: 10px;"></div></div></div><p  style=" text-align: left; ">Cooper is 5 months old this week.&nbsp; He is now 9lbs 1.5 oz.&nbsp; The weight gain is slow but he is getting chubby.&nbsp; He will be going to Spectrum this week Tuesday for his surgery. Please keep him in your prayers that all will go well.&nbsp; We are really hoping this surgery will bring good things for Cooper.&nbsp; No more feeding tube in his nose and no more painful reflux.<BR><BR>Cooper has been to the Dr's office several times this month for respitory virus's.&nbsp; The antibiotics have helped but having him get sick has been a scarey reminder that it wouldn't take much to land him in the hospital.<BR><BR>We have seen Dr. Droste, a great pediatric&nbsp;opthemologist,&nbsp;for Coopers eyes.&nbsp; His right eye has normal vision and his left eye doesn't seem to have much vision.&nbsp; This is great news.&nbsp; When Cooper was born we faced the prospect of a child with no hearing or vision.&nbsp; Now we find out he has normal vision in one eye and moderate hearing loss.&nbsp; God is good.&nbsp; We will be going to Detroit on July 1st to have Dr. Capone who is an amazing opthamologist&nbsp;look at Coopers bad eye.&nbsp; They will be doing an ultrasound on his eye and if they can do anything to help his eye they will operate that same day.&nbsp; They don't usually do this all on one day but they are making an exception for us.<BR><BR>Cooper is doing really well.&nbsp; His personality is starting to come out.&nbsp; He wants to sit up (as well as he can) and loves to rough house.&nbsp; He smiles often when played with and Darrel can really get him laughing.&nbsp; What a great sound!&nbsp; We were just saying today that he has already come farther than we thought he might.&nbsp; We are praying for a great future for Cooper!&nbsp; I know he has already touched lives and made a difference in ways we could have never imagined.<BR><BR></p>]]></content:encoded></item><item><title><![CDATA[4 Months Old]]></title><link><![CDATA[http://thedehaans.weebly.com/2/post/2009/05/4-months-old.html]]></link><comments><![CDATA[http://thedehaans.weebly.com/2/post/2009/05/4-months-old.html#comments]]></comments><pubDate>Fri, 15 May 2009 11:21:04 +0700</pubDate><category><![CDATA[Uncategorized]]></category><guid isPermaLink="false">http://thedehaans.weebly.com/2/post/2009/05/4-months-old.html</guid><description><![CDATA[Cooper is 4 months old!&nbsp; Wow, I can hardly believe it's been that long already.&nbsp;&nbsp; His official 4 month well baby visit&nbsp;is next week but, unofficially he is 8lbs 3.5oz.&nbsp; We recently purchased a baby scale so we could do weekly weights at home.&nbsp; As I talked about in the last post we have been struggeling with Cooper's reflux and getting him to gain weight.&nbsp; With his reflux being so severe we have pretty much abandoned the bottle an [...] ]]></description><content:encoded><![CDATA[<p  style=" text-align: left; ">Cooper is 4 months old!&nbsp; Wow, I can hardly believe it's been that long already.&nbsp;&nbsp; His official 4 month well baby visit&nbsp;is next week but, unofficially he is 8lbs 3.5oz.&nbsp; We recently purchased a baby scale so we could do weekly weights at home.&nbsp; As I talked about in the last post we have been struggeling with Cooper's reflux and getting him to gain weight.&nbsp; With his reflux being so severe we have pretty much abandoned the bottle and have been concentrating on keeping as much food in his stomach as we can.&nbsp; On June 16th Cooper will have surgery to have a stomach tube (G-Tube) put in and have&nbsp;a laparoscopic nissen fundaplication.&nbsp; The laparoscopic nissen fundaplication is taking part of the stomach and wrapping it around the esophagus.&nbsp; This will make the opening from the stomach to the esophagus smaller and keep the acid in the stomach from coming up.&nbsp; Having this done should make a huge difference with his reflux and hopefully make him much more comfortable.&nbsp; The reflux causes coughing, gagging and makes him very uncomfortable sometimes.&nbsp; The G-tube will be much more comfortable for him than the nasal tube (NG-Tube) and is a long term solution since we foresee continuing feeding issues.&nbsp; It will also be nice to not have to worry about his loose tube and weekly changings.&nbsp; These changes should help Cooper gain weight and make him more comfortable which will give him the best chance at feeding orally.&nbsp; He will be in the hospital for 2 to 3 days following surgery.&nbsp; I'm a little nervous about juggling everything (the kids) and Cooper being in the hospital overnight, but I know everything will work&nbsp;itself out.&nbsp;<br><br>Cooper has had his hearing tested and he has moderate hearing loss in both ears.&nbsp; The doctors believe ear drums are present in both ears, however are covered by bone.&nbsp; Basically, his ear canals "dead-end" at hiWe are&nbsp;extremely&nbsp;happy that Cooper has hearing, this is definitely an answer to our prayers.&nbsp; We are in the process of getting a bone conduction hearing aid for him, and I have been busy making calls to see what is and isn't covered through our many insurances.&nbsp;&nbsp;We are so glad he will be able to hear his sisters talk and sing to him.&nbsp; I can't believe how much we took for granted before Cooper.<br><br>In general we as a family&nbsp;are doing good.&nbsp; The girls <strong>ADORE</strong> Cooper.&nbsp; Leila loves to hold Cooper and&nbsp;I'm amazed at how gentle Tess is with Cooper.&nbsp;&nbsp;Tess is 18 months old and&nbsp;as we all know 18 month olds are notorious for biting, hitting and pulling hair.&nbsp;&nbsp;Tess is always trying to get Leila but she has nothing but kisses and rubs for Cooper.&nbsp; Darrel and I recently celebrated our 11 year wedding anniversary and 17 years together as a couple.&nbsp; As a couple and a family we are constantly growing and learning.&nbsp; Sometimes things get tough but I know God has good things in store for us.<br><br>Keep the faith.<br><br>Kalani<br><br></p>]]></content:encoded></item><item><title><![CDATA[3 Months old!]]></title><link><![CDATA[http://thedehaans.weebly.com/2/post/2009/04/3-months-old.html]]></link><comments><![CDATA[http://thedehaans.weebly.com/2/post/2009/04/3-months-old.html#comments]]></comments><pubDate>Wed, 08 Apr 2009 12:04:50 +0700</pubDate><category><![CDATA[Uncategorized]]></category><guid isPermaLink="false">http://thedehaans.weebly.com/2/post/2009/04/3-months-old.html</guid><description><![CDATA[Hi everyone!&nbsp; I know we haven't updated Cooper's section in a while.&nbsp; There is so much going on where do you begin and when do you find the time to post it?&nbsp; I will do my best. Here we go...&nbsp; As of this week he is&nbsp;7 lbs, 18 3/4 inches.&nbsp; Our most immediate struggle has been his weight.&nbsp; Every day we&nbsp;try to feed him from a bottle, then he gets the rest through his&nbsp;feeding tube.&nbsp; He has  [...] ]]></description><content:encoded><![CDATA[<p  style=" text-align: left; ">Hi everyone!&nbsp; I know we haven't updated Cooper's section in a while.&nbsp; There is so much going on where do you begin and when do you find the time to post it?&nbsp; I will do my best.<br /><br /> <br />Here we go...&nbsp;<br /><br /> As of this week he is&nbsp;7 lbs, 18 3/4 inches.&nbsp; Our most immediate struggle has been his weight.&nbsp; Every day we&nbsp;try to feed him from a bottle, then he gets the rest through his&nbsp;feeding tube.&nbsp; He has begun to have reflux which has made him&nbsp;refuse the bottle.&nbsp; Poor little guy, who wants to&nbsp;eat if you know it will&nbsp;hurt&nbsp;when it comes up.&nbsp;We have him on a high calorie formula but with the reflux it has been a struggle to get him to gain weight.&nbsp; We have been playing with different formulas and medicines and in the past 2 weeks he has gained 11oz.&nbsp; We are really happy with this amount of weight gain and hope it continues.&nbsp;&nbsp;He&nbsp;has gained almost 3 lbs since we left the hospital and his face is filling out and he actually has a few rolls on his legs:)<br /><br />We have met with many of the specialist that will be working with Cooper and we are very lucky to have such&nbsp;good doctors here in Grand Rapids.&nbsp; Coopers next surgery on his colostomy will take place around 6 months.&nbsp; His cleft palate will be repaired around 1 year.&nbsp; One of his hands will be straightened before he is 1 with the other hand following it.&nbsp; They do these is in stages as the hand needs to be in a cast for 6 weeks following the surgery.&nbsp; <br /><br /> Cooper had another brain ultrasound that showed his brain tumor has not grown.&nbsp; This is good news and will followed up with an MRI in several months.&nbsp;&nbsp;&nbsp;They will be doing more genetic testing on him as they are concerned that the brain tumor suggests that he has an additional genetic mutation called Tuberous Sclerosis Complex (TSC).&nbsp; We are of course hoping this comes back negative and ask for prayers regarding this.&nbsp; <br /><br /> He will be going in for a BAER hearing test in April.&nbsp; This test will determine if he has hearing in his inner ears.&nbsp; They were unable to test him in the office since his ear canal was to small to fit any of their equipment.&nbsp; He is going to be fitted for a bone conduction hearing aid, also in April.&nbsp; This hearing aid is on a head band and is placed behind his ear.&nbsp; It uses his skull to amplify the noise to his inner ears.&nbsp; We do not have an appointment with the opthamologist until May but he seems to be looking at and tracking objects.&nbsp; <br /><br /> Coopers&nbsp;Hemotologist is wonderful and his blood counts are normal, which is what is expected at this point.&nbsp; He will have to have his counts done before surgeries otherwise only once a year until he is five.&nbsp; Between ages 7 to 12 is when they begin to see problems with blood counts.<br /><br /> <br />Most days we have a great outlook and Cooper is just a regular newborn with regular needs.&nbsp; But on a day filled with appointments when your reminded that Cooper is not in fact a regular newborn it is tough.&nbsp; We take each appointment as it comes and try to give our worries to God.&nbsp;&nbsp;He is faithful.&nbsp;&nbsp;&nbsp;<br /><br />We have begun to see some progress with his development.&nbsp; He has started making baby noises &amp; facial expressions.&nbsp; We have seen a smile.&nbsp; A moment all parents can't wait for.&nbsp; He is moving his arms and legs and really gets them going, he is&nbsp;quite the wiggle worm.&nbsp; He loves to have his pj's off&nbsp;&nbsp;and&nbsp;likes bath time&nbsp;with warm air from the space heater blowing on him.&nbsp; He likes raspberries blown on his forehead and to be held.&nbsp; He is very content and sleeps alot (what a blessing with two other kids that need mom).<br /><br />We are so thankful for our beautiful baby boy.&nbsp; We are also thankful for everyone that continues to pray for our family and gives us the support we need to get through the rough spots.&nbsp; Bless you!<br /><br /><br /><br /><br /><br /><br /><br /><br />&nbsp;<br /><br /><br /><br /></p>]]></content:encoded></item><item><title><![CDATA[Settling In]]></title><link><![CDATA[http://thedehaans.weebly.com/2/post/2009/02/settling-in.html]]></link><comments><![CDATA[http://thedehaans.weebly.com/2/post/2009/02/settling-in.html#comments]]></comments><pubDate>Tue, 10 Feb 2009 09:48:53 +0700</pubDate><category><![CDATA[Uncategorized]]></category><guid isPermaLink="false">http://thedehaans.weebly.com/2/post/2009/02/settling-in.html</guid><description><![CDATA[Things are going well at home.&nbsp; We're getting into a routine, as well as learning the ropes of having a newborn in the house again.&nbsp; Cooper is doing great at keeping to his feeding schedule, and making great progress with&nb [...] ]]></description><content:encoded><![CDATA[<span  style=" z-index: 10; float: left; "><a><img src="http://thedehaans.weebly.com/uploads/1/0/1/8/1018150/9586877.jpg" style="margin-top: 5px; margin-bottom: 10px; margin-left: 0px; margin-right: 10px; border: none; z-index: 10;" /></a></span><p  style=" text-align: left; display: block; ">Things are going well at home.&nbsp; We're getting into a routine, as well as learning the ropes of having a newborn in the house again.&nbsp; Cooper is doing great at keeping to his feeding schedule, and making great progress with&nbsp;taking more of his feedings&nbsp;orally.&nbsp; He took his first&nbsp;complete oral feeding today, no tubes involved!&nbsp; We hope and pray&nbsp;he'll continue to&nbsp;develop the strength and coordination&nbsp;he needs to feed orally.&nbsp; He has also had new arm splints cast and will be wearing them 8 hours at&nbsp;a time.&nbsp; We continue our busy month of February with many of the intitial outpatient appointments.&nbsp; We anticipate things calming down a bit after we get through this month.&nbsp; Kalani has been extremely busy with&nbsp;all the appointments, and coordinating things with the girls.&nbsp; Grandpa and Grandma DeHaan have been wonderful at helping with the girls, and being "on-call" for anything that may come up.&nbsp; We are blessed to have such great parents, and don't know what we'd do without them.&nbsp; <br /><br />The girls have been awesome big sisters.&nbsp; Tess is so cute planting her little&nbsp;kisses on Cooper.&nbsp; She's so careful and gentle with him, far from her true nature.&nbsp; Leila continues to be a big help with Cooper.&nbsp; She made the comment one day about her not minding that Cooper had a feeding tube, because if he didn't he'd be like all the other babies, and not as special.&nbsp; Talk about a proud parent moment.&nbsp; <br /><br />Thank you again for everyone's prayer and support we've received.&nbsp; We're truly blessed&nbsp;to have such amazing family and friends.&nbsp;&nbsp;</p><hr  style=" visibility: hidden; width: 100%; clear: both; "></hr>]]></content:encoded></item><item><title><![CDATA[No Place Like Home]]></title><link><![CDATA[http://thedehaans.weebly.com/2/post/2009/01/no-place-like-home.html]]></link><comments><![CDATA[http://thedehaans.weebly.com/2/post/2009/01/no-place-like-home.html#comments]]></comments><pubDate>Sat, 31 Jan 2009 11:12:33 +0700</pubDate><category><![CDATA[Uncategorized]]></category><guid isPermaLink="false">http://thedehaans.weebly.com/2/post/2009/01/no-place-like-home.html</guid><description><![CDATA[Cooper is home!&nbsp; After 12 days in the NICU, we were finally able to bring Cooper home on Tuesday.&nbsp; The discharge debriefing was a reality check, where we had a final review all of the doctor's findings, his treatments, and followup care.&nbsp; Needless to say, the calendar is full for his initial outpatient appointments.&nbsp; We'll get through them one at a time.Cooper's feeding schedule is every 3 hours, so we're getting used to having a ba [...] ]]></description><content:encoded><![CDATA[<p  style=" text-align: left; ">Cooper is home!&nbsp; After 12 days in the NICU, we were finally able to bring Cooper home on Tuesday.&nbsp; The discharge debriefing was a reality check, where we had a final review all of the doctor's findings, his treatments, and followup care.&nbsp; Needless to say, the calendar is full for his initial outpatient appointments.&nbsp; We'll get through them one at a time.<br /><br />Cooper's feeding schedule is every 3 hours, so we're getting used to having a baby in the house again and the related lack of sleep.&nbsp; We're adjusting, but it's going well.&nbsp; He continues partial oral feedings, with the remainder by feeding tube.&nbsp; We also have a couple of colostomy pouch changings under our belt, as well as a feeding tube fix following an early morning blunder (by Dad) that ripped the feeding tube out of his nose.&nbsp; Mom to the rescue and crisis overted.&nbsp; <br /><br />It has been fun to watch the girls watch Cooper and interact with him.&nbsp; Tess is content with pointing at Cooper and saying "baby", while Leila prefers the hands-on approach.&nbsp; Leila's motherly care knows no bounds.&nbsp; With Cooper crying one late night, Leila (half-asleep) sang "Twinkle, Twinkle" in an attempt to calm him.&nbsp; It worked for Tess, so why not?&nbsp; Leila loves to hold and talk to Cooper, as well as offer an extra pair of hands when needed.<br /><br />We've received many meals from family and friends.&nbsp; We thank everyone sincerely for this, as not having a meal to worry about at the end of a long day is priceless.&nbsp; All of it has been delicious!&nbsp; Thank you. &nbsp;&nbsp; <br /></p>]]></content:encoded></item><item><title><![CDATA[The Official Announcement]]></title><link><![CDATA[http://thedehaans.weebly.com/2/post/2009/01/the-official-announcement.html]]></link><comments><![CDATA[http://thedehaans.weebly.com/2/post/2009/01/the-official-announcement.html#comments]]></comments><pubDate>Sat, 31 Jan 2009 10:50:23 +0700</pubDate><category><![CDATA[Uncategorized]]></category><guid isPermaLink="false">http://thedehaans.weebly.com/2/post/2009/01/the-official-announcement.html</guid><description><![CDATA[ [...] ]]></description><content:encoded><![CDATA[<div ><div style="text-align: center;"><a><img src="http://thedehaans.weebly.com/uploads/1/0/1/8/1018150/3557963.jpg" style="margin-top: 10px; margin-bottom: 10px; margin-left: 10px; margin-right: 10px; border: 1px solid black;" /></a></div></div>]]></content:encoded></item><item><title><![CDATA[Super Cooper]]></title><link><![CDATA[http://thedehaans.weebly.com/2/post/2009/01/super-cooper.html]]></link><comments><![CDATA[http://thedehaans.weebly.com/2/post/2009/01/super-cooper.html#comments]]></comments><pubDate>Sat, 24 Jan 2009 12:07:32 +0700</pubDate><category><![CDATA[Uncategorized]]></category><guid isPermaLink="false">http://thedehaans.weebly.com/2/post/2009/01/super-cooper.html</guid><description><![CDATA[This is kind of our brief acceptance speech, as well as a brief update of how Cooper is doing.&nbsp; First and foremost, we are so thankful to God for blessing us with Cooper, being by our side and his through everything so far, and giving us the strength thro [...] ]]></description><content:encoded><![CDATA[<div ><div style="text-align: center;"><a><img src="http://thedehaans.weebly.com/uploads/1/0/1/8/1018150/1191487.jpg" style="margin-top: 10px; margin-bottom: 10px; margin-left: 10px; margin-right: 10px; border: none;" /></a></div></div><p  style=" text-align: left; ">This is kind of our brief acceptance speech, as well as a brief update of how Cooper is doing.&nbsp; First and foremost, we are so thankful to God for blessing us with Cooper, being by our side and his through everything so far, and giving us the strength through him to to walk alongside Cooper on this uncertain road.&nbsp; The prayer and emotional support we've received from friends and family thus far has been quite overwhelming, and always uplifting.&nbsp; We want to thank everyone for keeping our family in your prayers.&nbsp; Please pass on our thanks to those including us in their prayers that we may not even know.&nbsp; It means so much to us as we believe in and can feel the power of prayer.<br /><br />Cooper is doing very&nbsp; well at Spectrum NICU.&nbsp; He is now off the ventilator, and they have removed his IV as well.&nbsp; He is starting to make a dent in the supply of milk that Kalani has been tirelessly providing since his birth.&nbsp; While most of his feeding it done through a feeding tube still, we're encouraged by his progress at oral feeding.&nbsp; At this point, he still lacks the strength and stamina to effectively take a complete bottle, although he tries hard.&nbsp; We're told his suck will strengthen with time and oral therapy.&nbsp; Cooper now has tiny splints that were made for his hands.&nbsp; Although he gets frustrated with having them on (currently 8 hours a day, with 2 hours off between), the goal is to stretch his ligaments and straighten his hands to be in line with his forearm.&nbsp; Lacking the radius bone in each arm, his wrist doesn't have the base it needs to be centralized on his arm.&nbsp; In the future, orthopedic surgery will help correct this to an extent.&nbsp; An MRI of his head also indicated a large mass in his brain.&nbsp; The neurosurgeons believe this to be cycstic at this point, but will continue to monitor his progress and will followup with a ultrasound and MRI within 3 months.&nbsp; We're uncertain if this will affect his function or development at this time.&nbsp; As has been the case with many of the findings, "some people live normal lives with it, and some don't."&nbsp; His hearing is also still questionable at this point, as is his acute vision.&nbsp; We will learn more with time and additional followup testing.&nbsp; <br /><br />The plan is to work up Cooper's tolerance to regular feedings of milk before we can bring him home.&nbsp; Most likely, he will remain on the feeding tube while at home.&nbsp; We will continue to work with him to strengthen his oral feeding abilities.&nbsp; Please pray with us for his continued development toward feeding 100% orally.&nbsp; Although we honestly don't feel completely prepared to have him home, we're all excited and anxious to have him join Mom, Dad and sisters soon.&nbsp; Leila talks endlessly of being "two big sisters" and is ready to shower Cooper with love and everything she can do to help him.&nbsp; Her unabashed love and affection toward him is a lesson for us all.&nbsp; She wants more than anything to hold her baby brother, but was satisfied last night to assist the nurse with taking his temperature, blood pressure and listening to his heart through a stethoscope.&nbsp; Oh, and she asked today if he'll show up in the mailbox soon.<br /><br />We thank you for your prayers and will continue to keep everyone posted on Coop.<br /><br /><br /><br />&nbsp;&nbsp; &nbsp; &nbsp;&nbsp; <br /></p>]]></content:encoded></item></channel></rss>
