Cooper is home!  After 12 days in the NICU, we were finally able to bring Cooper home on Tuesday.  The discharge debriefing was a reality check, where we had a final review all of the doctor's findings, his treatments, and followup care.  Needless to say, the calendar is full for his initial outpatient appointments.  We'll get through them one at a time.

Cooper's feeding schedule is every 3 hours, so we're getting used to having a baby in the house again and the related lack of sleep.  We're adjusting, but it's going well.  He continues partial oral feedings, with the remainder by feeding tube.  We also have a couple of colostomy pouch changings under our belt, as well as a feeding tube fix following an early morning blunder (by Dad) that ripped the feeding tube out of his nose.  Mom to the rescue and crisis overted. 

It has been fun to watch the girls watch Cooper and interact with him.  Tess is content with pointing at Cooper and saying "baby", while Leila prefers the hands-on approach.  Leila's motherly care knows no bounds.  With Cooper crying one late night, Leila (half-asleep) sang "Twinkle, Twinkle" in an attempt to calm him.  It worked for Tess, so why not?  Leila loves to hold and talk to Cooper, as well as offer an extra pair of hands when needed.

We've received many meals from family and friends.  We thank everyone sincerely for this, as not having a meal to worry about at the end of a long day is priceless.  All of it has been delicious!  Thank you.   

 


Comments

Margie

Mon, 02 Feb 2009 07:06:44

Little Cooper is following the DeHaan tradition....of super cute kids :) He is adorable.

 

Mon, 02 Feb 2009 09:23:16

Hello!
Congrats!!!
I have a daughter with FA and she is currently going through transplant.
She was born with many problems/issues like Cooper.
I will keep Cooper in my prayers.
Best Wishes,
Nanette Foster (Dianna's Mom)

 

Nicole fauver

Sat, 25 Apr 2009 23:37:11

Hello!
I'm sorry to hear that Cooper has been really sick and having problems with reflex.I have the same thing as he does.I'm almost 21 yrs old and i have FA too.Cooper is in my prayers and thougts.Hang in there!

Take care,
Nicole

 



Leave a Reply